Quality of Life Office Workshops 

 

Upcoming workshops

As part of the Cancer Australia QOL Technical Service, the University of Sydney QOL Office provides educational workshops to Clinical Trial Groups (CTG) staff and members to better equip them to include health-related QOL and other patient-reported outcome (PRO) measures/sub-studies in cancer clinical trials. The Quality of Life (QOL) Office is currently holding TWO half-day training workshops on Friday, 17th May 2019.

 

*If you wish to attend in person, please contact your CTG Executive Officer to nominate you*

 

WORKSHOP 1: DEVELOPING THE PRO COMPONENTS OF YOUR PROTOCOL (SPIRIT-PRO GUIDELINES)

Friday 17th May 2019, 10:00am – 1:00pm

Seminar Room 444, New Law Building Annex

The University of Sydney, Camperdown NSW.

The morning workshop introduces the SPIRIT-PRO checklist, a practical tool for guiding protocol development for the PRO components of trials. Participants are invited to bring a new or existing protocol. During the workshop participants will gain QOL expertise and develop the PRO components of their protocols.

Recommended for operations office staff involved in protocol development and investigators or researchers currently developing a CTG protocol.

If you are unable to attend in person, you can register here to join the live webinar during the lecture component of Workshop 1.

 

WORKSHOP 2: TRIAL CONDUCT - GUIDELINES FOR COLLECTING HIGH QUALITY PRO DATA

Friday 17th May 2019, 2:00pm – 5:00pm

Seminar Room 444, New Law Building Annex

The University of Sydney, Camperdown NSW.

The afternoon training workshop will cover trial conduct, specifically on the administration of PRO measures to optimise PRO data quality and minimise missing PRO data.

Recommended for operations office staff and trial coordinators.

If you are unable to attend in person, you can register here to join the live webinar during the lecture component of Workshop 2.

 

*If you wish to attend in person, please contact your CTG Executive Officer to nominate you*

 

Workshop recordings will be accessible to all CTG members via this webpage after 17 May 2019.

 

Other workshops

Please complete the online expression of interest form to indicate your preferences for future workshop topics, dates, and durations.

  

previous workshops

 
1.     Integrating Patient-Reported Outcomes into Clinical Practice

 

This one-day workshop will use the International Society for Quality of Life Research Users’ Guide as a framework. Specifically, Professor Snyder will go step-by-step through the process of implementing a PRO assessment intervention in practice covering nine topics: starting with determining the goals for the PROs; reviewing the decisions regarding population, timing, and measures; describing how to report and act on the PRO data collected; and finally discussing approaches for evaluating the intervention. Lectures will be supplemented with examples and group work.

 

On completion of this workshop, you will be able to:

1.       Identify the considerations involved in implementing PROs in clinical practice

2.      Evaluate the strengths and weaknesses of the different options for addressing the considerations

3.       Apply available resources to aid in designing a PRO implementation strategy

 

 Presenter: Professor Claire Snyder

 President of the International Society for Quality of Life Research (ISOQOL)

 Professor of Medicine, Division of General Internal Medicine, 

 Johns Hopkins School of  Medicine, Baltimore MD, USA


 

This workshop was held in November 2017, however, you can request a report by emailing the QoL Office: qol.office@sydney.edu.au

2. I2. Interpreting Quality of Life and other Patient-Reported Outcomes

 
 
Quality of Life (QOL) and other patient-reported outcomes (PROs) provide information about the impact of disease and treatment on the patient.

QOL/PROs should be interpreted in the context of other trial outcomes to provide a comprehensive assessment of treatment benefits and harms. Statistical significance alone is not a sufficient means of interpreting changes in PRO scores in a way that is clinically meaningful.

In this webinar you will learn:

  • How to interpret QOl PROs in a clinically meaningful way
  • Current approaches to determining the smallest difference in a PRO that matters

Click here to sign-in and access the webinar recording.

 

  Presenter: Prof Madeleine King

  Cancer Australia Chair in Cancer Quality of Life (QOL)

  Director of the QOL Office,

  Psycho-oncology Co-operative Research Group (PoCoG),

  School of   Psychology, University of Sydney, NSW, Australia

 

This workshop was held in April 2017, however you can still access the recording: https://redcap.sydney.edu.au/surveys/?s=JXPJA9H3NL