BRAINS ADAPT Portal

What the study is about

We are developing an online portal that will be used to identify anxiety, depression, and unmet needs of patients diagnosed with brain cancer and their caregivers. As part of the development, we are seeking feedback on the look, feel and functionality of the portal from patients, caregivers, and health care staff. This feedback will be used to modify the portal by improving its useability and design.

 

What we are doing

We will be conducting interviews with people diagnosed with brain cancer, their caregivers, and health care professionals working with people with brain cancer. The interviews will be conducted using Zoom which is an online teleconference software. We will be asking participants to share their thoughts as they use the portal.

 

What we expect to find

Feedback about the design and ease of use of the of the portal will be used to improve the useability and design of the portal.

What are our next steps

We are currently recruiting brain cancer survivors, caregivers and health care professionals working with people with brain cancer to participate in the online interviews.

 

For more information about this study

Are you a health care professional who provides support to patients with brain cancer? This study may be suitable for you if you:

  • Are currently employed in a clinical role
  • Provide care to patients with brain cancer
  • Are able to attend an interview using the Zoom online platform
  • Are able to read study materials in English

Have you been diagnosed with brain cancer or care for someone diagnosed with brain cancer? This study may be suitable for you if you:

  • Are aged 16 years or older
  • Diagnosed with brain cancer OR care for someone diagnosed with brain cancer
  • Are able to attend an interview using the Zoom online platform
  • Are able to read study materials in English
 

If you or someone you know are interested in participating, or would like further information, please click on the link: https://redcap.sydney.edu.au/surveys/?s=XKEL44JNEFMW9WFC or contact Dr Mona Faris: mona.faris@sydney.edu.au