PoCoG-2015-105: Implementing a sustainable and supported clinical pathway for managing anxiety and depression in cancer patients. A cluster randomised controlled trial to evaluate different implementation strategies. (ADAPT Cluster RCT)

Aim: A cluster randomized controlled trial (RCT) to evaluate the efficacy of a supported, tailored implementation strategy versus a standard implementation strategy for the A & D clinical pathway.

Investigator Team: ADAPT Program Group

Funder: Cancer Institute NSW

Recruitment: 1754

PoCoG-2015-109 - Understanding the barriers and facilitators of referral of patients to online therapy programs amongst health professionals at hospital-based cancer clinics

Aim: To explore the perceptions of health care staff working in cancer care toward online psychological therapy programs. The research questions include:

•      What potential barriers do health care staff see to the uptake of online psychological therapy programs in routine cancer care?
•      What potential facilitators do they see to the uptake of online psychological therapy programs in routine cancer care?
•      What models of care do they view as the most acceptable for incorporating online psychological therapy programs in routine cancer care?

Investigator Team: ADAPT Program Group

Recruitment: 25

PoCoG-2016-01: Genetic Cancer Risk in the Young

Aim: The study will examine the psychosocial impact of living with uncertainty over a prolonged period of waiting for genomic testing results

Investigator Team: Phyllis Butow, Megan Best, Ilona Juraskova, Ainslie Newson, David Thomas

Funder: NHMRC, Cancer Institute NSW, The Garvan Institute

Recruitment: 1095

PoCoG-2016-02: Molecular Screening and Therapeutics Program

Aim: The study examines the psychological predictors of outcomes of patients receiving actionable results after psychosocial impact of living with uncertainty of genomic testing

Investigator Team: Phyllis Butow, Megan Best, Ilona Juraskova, Ainslie Newson, David Thomas

Funder: NHMRC, Cancer Institute NSW, The Garvan Institute

Recruitment:  1541

PoCoG-2016-04 Clinician views on discussing genomic testing with cancer patients

Aim: The research project is aiming to explore the challenges encountered by medical oncologists in returning genomic results to their patients, and what support would make this task easier. This information will be used to guide the education initiatives for younger oncologists.

Investigator Team: Phyllis Butow, Mandy Ballinger, Megan best, Subo Thavaneswaran, David Thomas, David Goldstein, Bettina Meiser

Recruitment: 108

PoCoG-2016-105: management of clinical anxiety in cancer care: A national survey to explore clinician need for anxiety management training

Aim: To explore the preparedness and current practice of Australian cancer health care professionals (CHCP) to assess and manage anxiety in patients with cancer

Investigator Team: Brian Kelly, Haryana Dhillon, Lisa Beatty, Monika Janda, Lisa Lampe, Donna Milne, Joanne Shaw

Recruitment: 100

PoCoG-2016-201: How depressed and anxious people make help-seeking decisions

Aim: To explore decision-making related to help-seeking for mental health concerns among patients with cancer and anxiety/ depression.

Investigator Team: Joanne Shaw, Haryana Dhillon, Phyllis Butow, Richard De Abreu Lourenço, Dr Lisa Beatty, Dr Laura Kirsten

Recruitment: 7

PoCoG-2016-401: PiGeon.1 Cancer risk in the young

Aim: Investigating family communication of genomic test results and interactions with healthcare professionals.

Investigator Team: Phyllis Butow, Ainsley Newson, Megan Best, Bettina Meiser, Ilona Juraskova, David Goldstein, Katherine Tucker, Mandy Ballinger, Timothy Schlub

Recruitment: 75

PoCoG-2016-402: PiGeon.2: Molecular screening and therapeutic program

Aim: To explore psychological, behavioural and ethical impact of molecular tumour profiling (MTP) for advanced cancer patients.

Investigator Team: Phyllis Butow, Ainsley Newson, Megan Best, Bettina Meiser, Ilona Juraskova, David Goldstein, Katherine Tucker, Mandy Ballinger, Timothy Schlub

Recruitment:65

PoCoG-2018-09: A research agenda for fear of cancer recurrence

Aim: FCR is the fear, worry or concern relating to the possibility that cancer will come back or progress - it is pervasive amongst cancer survivors. Whilst research in the field of FCR has increased dramatically recently, many issues remain unaddressed. Setting a clear research agenda would move the field forward. This study aimed to use a Delphi approach, to identify FCR research priorities for Australia.

Investigator Team: Phyllis Butow, Louise Sharpe, Haryana Dhillon, Joanne Shaw, Lisa Vaccaro

Recruitment: 31

PoCoG-2019-101: PRO Pictogram ESAS study 1

Aim: To develop a pictorial version of the Edmonton Symptom Assessment Scale (revised) for use with CALD and lower literacy cancer populations.

Investigator Team: Heather Shepherd, Joanne Shaw, Haryana Dhillon, Phyllis Butow

Recruitment: 20

PoCoG-2020-501: Experiences and perspectives of patients and family members, health professionals working in cancer care and non-government cancer services regarding the COVID-19 pandemic

Aim: To explore experiences of COVID-19 on treatment decision making, psychological well-being, workforce changes, moral distress and unmet needs specifically related to the pandemic, from the perspectives of cancer patients/survivors and their family members, health professionals working in cancer care and non-government cancer services

Investigator Team: Phyllis Butow, Joanne Shaw, Lisa Beatty, Laura Kirsten, Ilona Juraskova, Brian Kelly, Louise Sharpe, Haryana Dhillon, Phillip Beale, Ray Chan, Maria Cigolini, Polly Harvard, Zoe Butt

Recruitment: 25

PoCoG-2020-502: Barriers and Enablers to Implementing Telehealth Consultations in Psycho-oncology during the COVID-19 Pandemic: lessons for future implementation

Aim: To explore the barriers and enablers to delivery of psycho-oncology services via telehealth and identify predictors of attitudes to use of telehealth in psycho-oncology

Investigator Team: Joanne Shaw, Brian Kelly, Lisa Beatty, Phyllis Butow, Haryana Dhillon, Laura Kirsten, Zoe Butt

Recruitment: 19

PoCoG-2018-20: An international research agenda for fear of cancer recurrence/progression - online survey

Aim: To elicit initial views regarding research priorities pertaining to fear of cancer recurrence/progression, to guide investigators and funding bodies.

Investigator Team: Phyllis Butow, Louise Sharpe, Joanne Shaw, Haryana Dhillon, Sophie Lebel, Nick Hulbert Williams, Ben Smith

Recruitment:21

PoCoG-2018-21: Focus group consultation on international research agenda for fear of cancer recurrence/progression

Aim: To provide in-depth qualitative data on research priorities regarding fear of cancer recurrence/progression, to guide investigators and funding bodies.

Investigator Team: Phyllis Butow, Louise Sharpe, Joanne Shaw, Haryana Dhillon, Sophie Lebel, Nick Hulbert Williams, Ben Smith

Recruitment:16

PoCoG-2018-22: Delphi survey for international consensus on research agenda for fear of cancer recurrence/progression

Aim: To develop international consensus on research priorities regarding fear of cancer recurrence/progression to guide investigators and funding bodies.

Investigator Team: Phyllis Butow, Louise Sharpe, Joanne Shaw, Haryana Dhillon, Sophie Lebel, Nick Hulbert Williams, Ben Smith

Recruitment:25