Brain Cancer Resources
Caring for the Carer
Caring for a friend or family member diagnosed with a brain tumour can feel like trying to understand a new and unfamiliar world.
Developed and evaluated as part of the BRAINS Program, this work was led by Dr Helen Haydon from The University of Queensland in collaboration with PoCoG, Cancer Symptoms Trials Group, and The Cooperative Trials Group for Neuro-Oncology (COGNO), to create an online resource to help carers in caring for someone with a brain tumour.
Download the information flyer here, or visit the Caring for the Carer website.
Invisible Brain Cancers - Living with the social and economic impact of IDH-mutant glioma
Released in August 2025, the Invisible Brain Cancers white paper authored by EvoHealth is an evidence-based report describing the profound difficulties of living with and managing isocitrate dehydrogenase (IDH) mutant glioma in Australia. The report outlines five key recommendations to improve the lives of people with IDH-mutant glioma, their carers, and families.
View or download the full PDF report here.
Click here to access the August 26 media release and related articles.
Presentations
A number of informative presentations and videos can be seen on our BRAINS Program channel here, including ‘The Future of Brain Cancer Care: Supporting People Better’: A showcase from early and mid-career researchers on supportive care and survivorship research in brain cancer.